Living with Pericarditis
Meet some of the approximately 160,000 people in the US who experience pericarditis every year. These are the stories of mothers, students, professionals, educators, families—all finding ways to triumph over the day-to-day burden of pericarditis.
The young mother of 3 started to feel the symptoms of pericarditis in her 20s, leading doctors to focus on causes other than her heart. After all, people that young don’t usually have heart issues. And so Vanessa began living with the burden of pericarditis. It’s taken a lot from her and her family, but it hasn’t taken her infectious smile.
After a complication from a heart procedure, Jill started feeling severe chest pain. ER doctors treated her for a pericardial effusion and sent her home. But days later, she was back in the ER. Multiple doctors and multiple diagnoses later, this career educator is fighting both flares and a lack of readily available pericarditis information.
Her doctors were worried she had a stroke. The actual problem was cardiac tamponade. And when she left the hospital, she thought the issue was resolved. Unfortunately, it was only the beginning of complicated pericarditis. Listen as Dona recounts her search for an effective treatment and the effects pericarditis has had on her active life.
Episode 1: Journey to diagnosis
Episode 2: Searching for the right treatment
Episode 3: The impact of recurrent pericarditis
Two decades is a long time to wait for any diagnosis. But when Anna finally heard “recurrent pericarditis,” there was a version of relief. Listen as she combats dismissal by doctors, the significant impact of flares on her life, and her will to make others understand what she’s going through.